Ssese beauty blighted by dysfunctional health system

Don’t let the tranquil, picturesque seclusion of the island district of Kalangala fool you; this home to Ssese islands, an archipelago of 84 islands, is a perfect natural beauty, but also a poster child for numerous health and system plagues associated with many far-flung districts. Seeing Lake Victoria’s waves reluctantly touch the shores and feeling the morning chill bite one’s skin is tantalizing. However, on this particular morning, hundreds of people saunter through the serpentine roads on Bugala Island to receive free medical care courtesy of a medical camp organised by Uganda Health Marketing Group (UHMG) last week. The stories from the locals about the challenges of accessing health services are striking. Robina Nakato, formerly from the island of Bubeke whose toddler died earlier this year from severe malaria, blames the death on the poor quality health care on the island. “I had earlier reported to a drug store in Bubeke and was given drugs by a ‘nurse’ since there was no doctor, but [the drugs] did not work. I cannot afford coming to Kalangala Health Centre IV all the time, because a trip costs me about Shs 40,000, which I don’t have,” the mother of two says. “My son worsened at home and a few hours after arriving at the health centre, he died.” ACCESS DELAYS There is no district hospital and Kalangala HC IV is the main referral health facility for the 64 habitable islands. The islanders have repeatedly highlighted the austerity of an inadequate transportation to access health facilities, leaving many of them to resort to the expensive and scarce private clinics or even traditional healers. “That night will forever haunt us, because I wonder, had it not been for the transport delay and earlier wrong diagnosis, would my son be alive?” Nakato forlornly says. According to Willy Lugoloobi, the Kalangala district chairman, Bubeke and Mazinga islands are the hardest to reach. It will cost a person 80 litres of fuel and four litres of oil to travel from Bubeke to Kalangala HCIV. For those from Mazinga Island, the furthest from Kalangala town council, it takes 100 litres of fuel and five litres of oil. Each litre of fuel costs Shs 5000 in these parts. “In Kalangala, a walkable distance is talked of in terms of a swimmable distance. It is not only a hard-to-reach district but also a hard-to-stay in. About Shs 600,000 for primary health care is channelled in per quarter but even accessing that money from the bank is hard. In Mazinga, you have to use eight litres of fuel to reach the bank,” Lugoloobi says. All the islands are served by only 15 health centres, two thirds of which are located on Bugala, Kalangala district’s biggest and administrative island. Further referrals to Entebbe hospital or Masaka regional referral hospital are facilitated by the MV Kalangala ferry that costs Shs 15,000 per head from Lutoboka to Nakiwogo in Entebbe, and MV Pearl that docks at Bukakata, respectively. Deeply concerned for the wellbeing of their other children, Nakato and her family moved to Bugala last year. Unlike Nakato who could afford moving nearer to the health facility, thousands remain stranded on smaller islands meaning that delays in accessing health care services is costing lives and hampering the right to health. According to the 1995 Uganda Constitution, Objective XIV (b), the state shall ensure that all Ugandans enjoy the rights, opportunities and access to health services. However, the realisation of this access is still a far cry for the locals in Kalangala. According to the district’s statistics, only 17 per cent of expectant women deliver in health facilities. Sarah Subo, a health educator with the district for 15 years, says majority of the women depend on traditional birth attendants. MORE DEPRESSION Although health worker deployment is at 80 per cent within the district, Lugoloobi says that harsh working conditions are forcing medical workers out. “Teachers are now forced to share their accommodation with medical workers, because medics have nowhere to sleep,” he agonised. Moreover, HIV prevalence remains high at 25 percent which implies that 25 of every 100 people are infected. Subo attributes the high prevalence to the falling condom use in the face of ever increasing commercial sex associated with fishing communities. “Unprotected sex costs Shs 20,000 and above, whereas protected sex is negotiable from about Shs 5000. Having more than eight sexual partners and swapping them is also common,” Subo explains, adding that the vice is spreading to adolescents too. The high prevalence is also brought on by drug stock outs in some months. To deal with these challenges, Prof George Kirya, a founder member of UHMG says it (UHMG) organises annual health camps in the district, bringing drugs, HIV testing, cancer screening, immunisation and health awareness closer to the locals. However, Lugoloobi says, all the health problems cannot be met in a health camp. “We need a district hospital and more health centres, because each of the seven sub counties is supposed to have a Health centre III. We appreciate the camp efforts but if one gets sick after, they are met with the familiar challenges,” he said. NEW PLEDGES Sarah Opendi, the state minister of health in charge of primary health care pledged to give the district two motorised boats to ease health workers’ movement among the islands. Their delivery is expected in August this year. “Government is also going to give the district priority status and establish maternity wards to reduce on maternal deaths,” she told residents during the health camp. Opendi, however, urged them to observe personal hygiene and safe practices to avoid diseases such as cholera. At least 1000 women, men and children attended the camp.

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New cancer unit lights up patients

Each day, about 200 people report to the Uganda Cancer Institute (UCI) in Mulago for treatment, checkups and counseling about the devastating malignancy. Some of them travel miles from the Democratic Republic of Congo (DRC), Burundi and Tanzania because UCI is the only national and regional free cancer referral centre.

Outside the outpatient department, tens of patients try to find sits, floor space and tree shades to rest and wait because wards are full. When the sun sets, patients who cannot afford transport fare back home saunter into the wards to sleep. Christine Namulindwa, the institute’s publicist, says the prohibitive cost of cancer treatment in private facilities has led many to seek free treatment at the institute. The high cost of equipment and drugs explain the exorbitant cost of treatment.

“The cheapest cancer treatment is about Shs 14 million and majority of the patients cannot afford it, which explains the overcrowding here. However, we are also met with the challenge of limited skilled personnel as there are only 12 oncologists,” Namulindwa says.

Children afflicted with cancer find rest-Photo Credit/Nicholas Bamulanzeki

In the past few years, UCI has reported a spike in cancer incidence, particularly infection related cancers such as Kaposi Sarcoma, sending a wakeup call to government. Although there is no nationwide data, estimates obtained from UCI’s registry indicate that some 300,000 Ugandans develop invasive (advanced stage) cancers and over 10,000 of these die annually.

NEW PREMISES

In 2011, government invested Shs 10.4 billion to construct a new, modern cancer unit. Currently, some of the wards on this six-floor unit are up and running. For now, mainly children, patients admitted to the private wing and those going to be operated are using the facility. Majority of patients are still using the old block as the new block is short of medical equipment.  

The new cancer block-Photo credit/Nicholas Bamulanzeki

Inside the children’s ward on level four, hued caricatures painted across the walls are a fresh face to the children’s treatment. Accordingly, these play a role in keeping the little ones in high spirits. Six year old Jordan Kibirige from Mukono was admitted here one week ago.

He is battling Burkitt’s lymphoma, a potentially fatal cancer that has left him with a painful swelling on the left side of his face. The lymphoma, associated with malaria, is known to grow rapidly such that the tumours double their size in five days.

“So far, we have been able to get quick treatment and bed space at this new facility. I hope my boy will soon recover,” Kibirige’s mother forlornly says.

At least one doctor and nurses are on duty here throughout the day, a sign of relief to the over 20 patients here.

So far the journey is comfortable; clean toilets, lifts, regular electric power, piped water and free lunch. The theatre, on level two, is operational and Namulindwa says it has greatly reduced congestion at Mulago hospital’s general theatre. The building also has a mortuary, intensive care unit, private wing and an imaging and nuclear medicine department.

Inside the children's ward

However, Namulindwa expresses fear that with the swelling number of patients, this facility will soon be overwhelmed.

“The new centre is expected to accommodate 100 patients but we’ll be seeing more than these,” she said.

The new facility will officially open mid this year.

MORE DEVELOPMENTS

A comprehensive state-of-the-art research, training and outpatient cancer centre is currently in the final stages of construction. The Hutchinson Cancer Research Institute- Uganda sits on 25,000 square feet and will include an outpatient clinic, chemotherapy infusion rooms, research laboratories, molecular diagnostic labs, a training center and data centre among others.

This facility seeks to ensure the availability of medical care, overcome the social and economic barriers to completing treatment and improve capacity of the medical infrastructure to diagnose and care for patients. With the new premises, it is hoped that the five-year survival rate of cancers such as leukemia which is less than 40 per cent will be improved.

The centre, whose construction began in April 2013, is slated to officially open in May this year. It is supported in part by the United States Agency for International Development, American Schools and Hospitals Abroad Programme.

Namulindwa also told The Observer that plans are underway to construct a Radiotherapy and Nuclear Medicine Centre.

In spite of these developments, challenges of limited beds and equipment, medical personnel brain drain and forbiddingly expensive drugs are rife.

“Diagnosis equipment for examining biopsies is only available at Mulago Referral hospital and because of the limited number of pathologists, results take up to two weeks to return,” Margaret Okello, a volunteer counselor at UCI, notes adding that there is only one radiotherapy machine in the entire referral hospital.

Moreover, because of the limited number of oncology personnel, nurses have had to be trained on the job in order to administer drugs.

Okello and Namulindwa urge government to subsidize pharmaceutical companies that supply drugs in order to make them more affordable and available.

“We also appeal to government to adequately remunerate skilled personnel and invest in the purchase of modern equipment such as a magnetic resonance imaging machine,” Namulindwa says. 

This article first appeared in The Observer.