Edrin Mbowa
has until recently been passing stool through an opening on the stomach. The
five year old minuscule bodied child was born with Hirschsprung’s Disease (HD),
a condition that causes blockage of the intestine so that stool cannot pass
through.
His mother,
Rose Ndagire, a resident of Buikwe district says Mbowa struggled with
constipation for one year until he eventually stopped producing stool. When he
was two years old, he underwent an operation at Mulago Hospital and an opening
was created on his stomach. Tubes for conveying waste out of his system were fitted
and it is on these that he has survived for the past three years.
“Mbowa has
not attended school despite him being of age because of this condition,”
Ndagire laments.
According to
an article on www.myclevelandclinic.org, for people with HD, the healthy
muscles of the intestine push the stool until it reaches the part of the
intestine without cells. At this point, the stool stops moving and new stool
begins to collect behind it.
“If is not
treated early, hospital says stool can fill up the child’s large intestine,
causing serious problems such as infection, bursting of the colon, and even
death,” Dr Rose Mary Nassanga, the head of Eurology at Mulago said.
However,
Mbowa now has regular bowel movements after undergoing an operation at just
concluded two week paediatric camp at Mulago Hospital.
About the camp:
The camp was
a collaboration between Mulago’s Paediatric Unit and British Columbia
Children’s Hospital in Canada. Its objective was to reduce the backlog of
children in need of surgery and help in the complex malformations like where a
child is born with no anus.
“We came
here to share and exchange ideas and expertise and for the two weeks, we have
received many children who need surgery and we have worked extra hours every
day to provide as much surgical care as possible,” Dr Damian Duffy the Executive
Director of the paediatric surgical evaluation office of the children’s
hospital said.
The
conditions that are were addressed include: Hernias (when part of an internal
organ or tissue bulges through a weak area of muscle), colostomy closure, liver
problems, malformations like un-descended testis, kidney and Wilms tumours
among others.
Dr Duffy
came along with a 14 man team including surgeons, physiologists, nurses, a
child life worker and a logistics person. A total of $25,000 from private
donations facilitated the operations of this team.
This is the
third time the camp is taking place in Mulago and the team is planning a forth
visit.
Benefits& challenges:
Dr Nasser
Kakembo, a paediatric surgeon of the unit says through the exchange of
knowledge and skills, they were able to deal with many of the complicated
cases. For example a child whose ends of the oesophagus were unconnected was
operated upon and is still alive though under care.
“There has
been a lot of sharing knowledge especially with joining intestines. We have
been using stitches but they have introduced new technology where we use
staplers,” he said.
Also, the
backlog of children in need of surgeries has been reduced.
The camp
attracted children from as far as South Sudan, Kenya and Tanzania.
However, Sr
Mary Ganaffa Babirye the senior nursing officer of the paediatric ward says there
is limited man power with only eight nurses and two operating surgeons. They
are thus forced to work extra hours every day due to the high number of
patients they receive- about 15 to 20 per day.
Also, the
bed capacity is limited.
“We have
only 60 beds and more often than not, there is an overflow of children. For
example at the start of the camp, the ward had 80children and this forced us to
improvise for them bedding on the floor,” she laments.
Sr Ganaffa appeals
to the administration to establish a single unit for the paediatric ward where
the orthopaedic and burns and others are joined and not separated as they now
are.
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